Kids with Chronic Illness: The Parents’ Burden
Kids with Chronic Illness -- The Parent's Burden: It's obvious that a child who's in a wheelchair, or one who's struggling with serious illness, is facing an extraordinary challenge. But we rarely stop to think about the burdens their parents carry; and if you're one of those parents, it may be hard to find someone to help support you. Today we meet a group of these parents, hear first-hand what their days are like, and find out what they do, and where they turn for help, to make their lives easier.
Guests:
Henry Adam, MD - Pediatrician
Professor of Clinical Pediatrics at Albert Einstein College of Medicine
Pediatrician, Department of Pediatrics, Children's Hospital at Montefiore
Board Certified, Pediatrics
Arlene Goldsmith, PhD - Chronic Illness Couselor
Executive Director, New Alternatives for Children (NAC)
Author, Those Children
Robert Wood Johnson Community Health Leader, 1994
Recipient, Lewis Hine Award
Nereida Feliciano, Parent of Child with Spinal Muscular Atrophy
Resources:
New Alternatives for Children
http://www.nac-inc.org/Association for the Care of Children's Health
http://www.acch.org/Starlight Starbright Children's Foundation
http://www.starbright.org/
Locate a regional office by calling 310-479-1212The Magic Foundation
http://www.magicfoundation.org/Books
Young People and Chronic Illness by Kelly Huegel
